Hi, this is Lorraine posting for Sarah. Sarah has had a rough couple days due to the Cytoxan. She has had severe nausea and mouth pain for the past 2 days and has been given a great deal of Ativan so she can sleep through it.
Sarah will get her last dose of Cytoxan this evening so hopefully tomorrow won't be so bad for her.
As all of you know Sarah is extremely positive and even during this she is still smiling. Then she falls asleep still with a smile on her face.
As of today the mucositis is not present. The pain in her mouth was caused by the Cyoxan which the are managing with heavy drugs.
Going to the bathroom still remains an issue. Hopefuly that will ease up once the chemo is complete tomorrow.
I hope you are all doing well. I cant tell you how much all of you mean to her and how your comments get her through the day.
Take care and I wish you all NED!!!!
Lorraine
About Me
- Sarah
- I'm a 43 year old, happily partnered lesbo. I was raised in downtown NYC in a commune, and the woman who raised me was the real Auntie Mame. I've lived also in Italy, India, and Ireland. By the time I was 10, I'd already lived with over 4,000 people. When I was 2 1/2, I drank oven cleaner. I didn't know I was gay until I was 26. My partner of over 9 years is one of the finest people I've ever known. She's from Brooklyn. I was treated for Stage IIIB Hodgkins Lymphoma, subtype Mixed Cellularity. First I did 6 months of ABVD chemo, and that secured a 14-month remission. My relapse was caught early and I went right into a stem cell transplant. The cancer had already returned when I had my 3-month post-transplant scans. There's no cure available to me at present, so I'm now entering a period of palliative care. We're hoping a Gemzar/Navelbine chemo combination will keep my cancer at bay for as long as 4 years -- that's the prayer. In the meantime, I am focused on savoring every moment....and maybe even losing a coupla pounds!
10 comments:
Hi Lorraine,
I hope Sarah gets to feeling better tonight and can read this. You have both been on our minds alot. Sarah you have so much courage. I looked it up in the dictionary to be sure I was correct in it's meaning. Courage is "the ability to face danger, difficulty, uncertainty, or pain without being overcome by fear or being deflected from a chosen course of action". Day after day you sign on to your Blog and share your experiences, happy or sad, with all of us who care about you. I'm not saying that you are not afraid, I am saying that you refuse to let that fear overcome you. And for this I admire you. Continue to keep your spirits up - both of you - we are rooting for you!
Take care,
Cheryl & Zel
Hi Lorraine & Sarah!
This is Sue & Angie....checking in.
We know this is a rough time but it too will pass & you will feel good again! Thank-fully there are drugs to ease the discomfort.
We are pleased that Lorraine will continue to keep us up to date when Sarah can't.....there are many people who care & want to know that she is OK. We are sending our positive thoughts & energy your way today & everyday.....
STAY STRONG!!!!
On a seperate note...I was able to convince my doctor to release me from hospital today....now I just have to try and eat enough. I haven't updated my blog yet, but wanted you to know....Angie
Thanks for updating us on how Sarah is doing. I hope the process becomes easier for her as time goes by!
Lorraine, thanks so much for the update. And, big ((((HUGS)))) to you. Remember to take care of yourself as well as Sarah. Right now she has Ativan to sleep through the rough patch. May it get no rougher.
Sarah ((((HUGS)))) and prayers that you feel much better soon. Keep pushing THROUGH out is just around the corner.
Cliff is doing 2 days of Cytoxan now. He is hanging in there, but had to be admitted because of a fever and chills. Antibiotics for him. Its actually 1/2 the CYtoxan he had earlier in the year. I expect him to recover quickly from this mini.
<3,
Judy
Hey sarah,
Keep on going, you can do it!! I'm happy to hear from lorraine that you are still smiling, despite it all. I hope lorraine is smiling too. hang in there, both of you.
sending you an extra twinkle for your christmas lights,
Kate
Lorraine, thanks so much for posting for Sarah! I couldn't help worrying a little.
It's almost (re)birth day!
Thanks for keeping us posted. I have everybody I know sending lots of hugs, smiles and prayers your way.
Sarah and Lorraine--
I am so glad you posted. I've been thinking about the both of you very often. I'm so sorry to hear of the rough time Sarah's having. This all leads to a positive end and I can't wait until she's feeling better. I don't even know what more to say!
Sending a ton of positive vibes your way.
Love and Hugs to you both
Gretchen
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